Diabetes MILES Youth

Originally posted on Diabetogenic:

Diabetes MILES Youth

Are you the parent of a child (aged 10 – 19 years) with diabetes? Then we need YOU! And your child with diabetes too.

You may remember that a few years ago now, the Diabetes MILES survey was conducted. Diabetes MILES looked at the psychological health of people living with diabetes, and the survey results continue to be collated and presented.

Now, a new study – Diabetes MILES Youth – is being conducted asking young people about what it’s like to live with diabetes, and how diabetes affects their wellbeing.

And because we all know that diabetes is a ‘family sport’, parents of kids with diabetes are also being asked to complete the survey.

The survey is only open until the end of September, so please take the time (about thirty minutes) to respond. (I know that you would get involved anyway, but as an added…

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Epilepsy 101: How Many People Have Epilepsy?

Originally posted on Life at Full Volume:

silence is not the answerHey Everyone! So here we are- I can’t believe it’s Wednesday already! Geez. So anyways, that aside this week’s topic is How Many People Have Epilepsy? Well, here we go! 

According to the World Health Organization (2012), there are 50 million (50 million!!!!!) people living with Epilepsy worldwide. 
80% of the people with Epilepsy are found in developing regions
70% of people living with epilepsy are treated, yet about three fourths of the people living with Epilepsy in developing regions do not receive the care they need

Here are the Statistics for People Living with Epilepsy in the United States:

2.2 Million people live with Epilepsy 
That’s about 7.1 for every 1000 people 

Higher numbers of people report active Epilepsy
That’s about 8.4 for every 1000 people. 

According to epilepsy.ca, the Statistics for people with Epilepsy in Canada are: 

Each year an average of 15,500 people learn they have epilepsy

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Introducing Rick Phillips

Originally posted on Test Guess and Go:

Laddie_Head SquareRick Phillips might be one of the busiest people in the Diabetes Online Community (DOC). The easiest place to find him is at TuDiabetes. He hangs out there under the name of “Rick the Blogabetic” and is an active blogger, forum participant, and member of the Care Team.

For those of you who are not active in the TuDiabetes community, the Care Team is composed of a group of dedicated members who moderate the forums, welcome newcomers to the site, post birthday greetings, look out for spammers, and provide support as needed to members of the community. It’s a big job and a compliment to be asked to be part of the team. After a few weeks of being part of the Care Team, Rick wrote a blogpost summarizing his thoughts on the “challenge to serve”. Here is an excerpt:

I truly love this site [TuDiabetes] and over the…

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Bringing science careers to life: Do it for the kids

Originally posted on ucdneuroscience:


AAAS has launched two new outreach campaigns, and they’re asking for us to participate. One campaign, called 5 Questions for a Scientist, is exactly that. Participate in short interviews about your science career to help showcase STEM career options to young students. The other call for outreach, AAAS STEM Talks, connects scientists with K-12 students via video chat to discuss…science!

 Click here for more info and email contacts. Shout out to our own Dr. Ling Wong for this info. Thanks, Ling!

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Ice Buckets of Awareness

Originally posted on DIY Medicine:



The timing was made for a movie. Jason Harris was in the midst of filming a documentary on how social media is empowering patients with ALS to play a larger role in disease advocacy and research, when the Ice Bucket Challenge spread like wildfire through the country’s—and then the world’s—online news feeds. The movement made its home in the ALS community early on, as patients suffering from the fatal neurodegenerative disease began participating and challenging others for their support. In mid-July, it went viral, and many ALS organizations saw a flurry of donations that dwarfed anything they’d ever received. The ALS Association, which has received the vast majority of the donations, collected $106 million between July 29 and September 2, as compared with $3.1 million during that same period last year. It was unprecedented, and it was incredible to see—and film.

I’ve never formally introduced Jason…

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Disability History: Berkeley Rotary Honors Judy Heumann and Ed Roberts

Originally posted on Disability Visibility Project:

The Rotary Club of Berkeley held their 2014 Rotary Peace Grove Awards Ceremony to honor Ed Roberts and Judith Heumann, leaders of the civil rights movement for the disabled, on July 16, 2014.

The following is an excerpt from a press release by Maxim Schrogin, Chair, Peace Committee, Berkeley Rotary:

Ed Roberts, a native Californian, and Judith Heumann, a native New Yorker, are the bookends in the story of the independent living movement for disabled persons in America. Both contracted polio as children, both fought for their right to attend school, and both gained post-graduate degrees from Cal Berkeley. Their combined tenacity energized the civil rights movement for the disabled, established laws to provide access, and created organizations that helped countless individuals around the world find ways to reach their potential.

Ed Roberts served as the Director of the California Department of Vocational Rehabilitation from 1976-1983. He passed away in 1995…

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Money matters

Originally posted on peaceworkconsultants:


As we work towards creating communities where victims of domestic violence can not only survive but thrive, it is important to not minimize the role of money.

Domestic violence happens in every social and economic status. We often think that it happens more in poor families but I think the more affluent are able to hide it more because they do not use traditional social services as much so they are not included in the stats. Victims working or living in high profile areas may not come forward because of a fear of losing status but poor people may have no choices for where to go. Each can be devastating.

Leaving a relationship or separating a household always has financial implications that sometimes has long lasting consequences. Mortgages cannot be undone when you are through with a relationship. Jobs are lost due to harassment. Bank accounts are emptied when passwords…

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