Coping and Advocacy

HOPE FOR KATHERINE BELLE

If you have read our other posts, “Faith. Hope. Love.,” “Death and Resurrection” and “Dance! Dance!, ” you will know much of our individual stories leading up to the moment when our universe was turned upside down.  As Dave has explained, on Friday, August 30, 2013, we received a phone call that forever changed our lives.  This was a call from a neurologist telling us our two year old daughter, Katherine Belle, likely has a rare and progressive genetic disease.

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What immediately followed was complete and utter numbness, disbelief, and unbearable pain.  It was so hard to believe that the world was still spinning when it felt as though it had suddenly stopped and literally knocked me off my feet.

I do not remember much of the moments, days, or even weeks following this devastating news, but I do recall repeatedly asking Dave to explain…

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