How I Helped the Institute of Medicine Understand How to Better Involve Patients in Healthcare

Advocacy in Action

By Caroline Wilkie

IMG_0373I am a kidney patient who has been on dialysis for the past four and a half years. I am passionate about spreading awareness about kidney disease. So when I got an invitation to speak at the Institute of Medicine last month, I was excited and a bit nervous—I am not a huge fan of public speaking! I was part of a panel that spoke at the Evidence Communication Innovation Collaborative meeting on shared decision making in end-of-life care and chronic illnesses. This is obviously an important, sensitive topic that needs to be addressed. Shared decision making is a collaborative process that allows patients and healthcare professionals to make decisions together. It utilizes the experience of the professional while also considering the preferences of the patient. Often, patients are not fully informed of all our care options. This process ensures patients have the information we need to…

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