International Pompe Day — Difference-Making

Today is International Pompe Day, a day to raise awareness about Pompe disease. Pompe is a rare genetic neuromuscular disease, and most of us who have it can share frustrating stories of misdiagnosis, including being told that nothing is wrong with us (when we clearly know there is). My diagnostic journey took me through just […]

via International Pompe Day — Difference-Making

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s