Today is International Pompe Day, a day to raise awareness about Pompe disease. Pompe is a rare genetic neuromuscular disease, and most of us who have it can share frustrating stories of misdiagnosis, including being told that nothing is wrong with us (when we clearly know there is). My diagnostic journey took me through just […]
It’s amazing just how much can change in such a short period of time. When I first sat down to write this post, I was just rested up from my second return back from Washington, DC. It’s been almost two weeks since I started that draft. Right after I got back from attending the incredibly […]
by Bert Fulks
…I still recall my first time drinking beer at a friend’s house in junior high school—I hated it, but I felt cornered. As an adult, that now seems silly, but it was my reality at the time. “Peer pressure” was a frivolous term for an often silent, but very real thing; and I certainly couldn’t call my parents and ask them to rescue me. I wasn’t supposed to be there in the first place. As a teen, forcing down alcohol seemed a whole lot easier than offering myself up for punishment, endless nagging and interrogation, and the potential end of freedom as I knew it.
For these reasons, we now have something called the “X-plan” in our family. This simple, but powerful tool is a lifeline that our kids are free to use at any time. Here’s how it works:
Let’s say that my youngest, Danny…
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